Insurance doesn’t cover it and there is little state funding. 1 year is life or death for children with VWM.
To help families with VWM
- Purchase necessary medical equipment not covered by insurance
- Purchase specialty vans necessary to carry wheelchairs and support disabled children
- Support the costs of adapting a home for wheelchair access
- Support the travel for medical treatment
- Support attendance at Leukodystrophy conferences so families can learn about the best options for their children
To support the only 2 research projects in the world looking into a cure for VWM disease
Thank you for your support!
*Link to pay pal or whatever accepted form of receivables